Phil's Story

 

I had my surgery on 4/21/99 and was turned on 6/3/99. Here is a simple journal of emails that I sent to friends.

Day 1
I just wanted to give you an update on today, all I can say if it never gets better from here I would still be happy! It has only been a few hours and I have heard sirens (I think we all hear sirens first, since the mappings are at hospitals!), the phone ring, clocks ticking, the modem dial and the tones the phone makes, people voices are clear there are still some beeps and whistles but the voices are distinct There is that Donald duck sound, but it is not a strong as I expected. While I am not saying I understand much if anything without relying on lip-reading and it fluctuates it is still pretty good; this has far exceeded my expectations for hook up. Everything makes noise! This keyboard is loud! I am frightened of water (smile). I watched the news and noticed there is a delay with captioning, I was able to understand a few words before they showed up on the screen. We did some covered mouth exercises (two syllable words and some sentences) and I got almost all most of them.  The only problem has been that the mike keeps constantly falling off!! I know this is the start and it will get even better. But what a good start! I think I had my expectations so low that for all I know this is normal results.

Day 2
I went back to my Audiologist. We added more magnets. Did the second mapping. We also did more words and sentences (I did pretty well). It was then off to work for the first time since turn on. My office is loud! I was overwhelmed by all the office noises. Phones ringing, people laughing and talking (it's Friday!) People at work sound fine; there is less of a robotic sound. I understand some people better than others, but no one is unintelligible.  People did the covered mouth thing. I just wish they would say something other than "What am I saying" or "Can you hear me" By the end of the day I was exhausted from all the noise. I felt guilty but took the implant off before bedtime. One thing I found was that turning on the implant was less traumatic each time, the first day I winced every time I had to reconnect it. The magnet is holding ok, but it is still falling off a bit!

Day 3
I had a bbq and did very well with friends. Everyone was so happy for me! They did the covered mouth thing (It is a party trick) and when I was able to tell them what they said - man the reaction I would get! It took alot of effort not to break down. As it got darker I got nervous but it held up well. For the first time with friends outside after dark I was not totally lost.  There was light though, I felt I could follow the conversation. The topper of the evening was when a friend was leaving; he was about 20 feet away and in a totally dark area. He asked, "When are you coming over?" I heard and understood it!


 

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